Prince Edward County to the southwest from the point

Category: Press

  • One-hour Internet Radio Feature on “What My Grandma Means to Say” January 17, 1:00 p.m (EST)

    On Tuesday, January 17, at 1:00 p.m. (EST)  Dr. Gordon Atherley from Toronto interviewed JC  to learn how “What My Grandma Means to Say”, the play and the storybook, can enable family discussions about Alzheimer’s disease and related forms of dementia.   Here is the link to the broadcast on VoiceAmerica:
    http://www.voiceamerica.com/episode/58907/what-my-grandma-means-to-say.

    Dr. Atherley invited JC to come on his program after reading one of her articles in the national media about the importance of including children in family discussions when someone in that family is living with Alzheimer’s disease. So often, families find it very difficult to speak among themselves about what is happening to someone about whom they care.  So often, the need of children to understand their place in such a situation is not given attention by health care providers.

    The discussion was far-ranging and included the important perspective offered by Kristen Irvine, a professional personal care worker who is very involved in supporting her own grandmother who is living with Alzheimer’s disease.

    Having education programs in schools that focus on Alzheimer’s and the use of “What My Grandma Means to Say” in training health care providers were some of the issues which arose during the discussion.

    At the site for the program is an e-mail address for comments on the broadcast which Dr. Atherley welcomes.

  • Canadian Dementia Knowledge Translation Network: a featured interview with JC

    The Canadian Dementia Knowledge Translation Network (CDKTN) interviewed JC about “What My Grandma Means to Say” and just posted extracts from that discussion on its website (www.LifeandMinds.ca).

    JC is delighted that CDKTN recommends “What My Grandma Means to Say.” As LifeandMinds.ca states: “it provides another excellent resource for families.”

    JC welcomes that endorsement. “I know that sharing information with researchers, caregivers and policy makers in the Network will bring the focus to children, who are often drawn into the role of caregivers when a family is affected by Alzheimer’s or related dementias.”   That reality is at the heart of  the project which includes a 10-minute play, a discussion guide for teachers, the illustrated storybook about Jake and his grandmother and a video project, for which fundraising is underway.

    LifeandMinds.ca is the web publication of the CDKTN.  “Established on March 31, 2008 through a 5-year CIHR grant, the CDKTN is a network for knowledge translation (KT) and exchange (KE) of research in Alzheimer’s disease and dementia. In a nutshell, KT is the adaptation of research findings into effective treatments, services, and products. KE is collaborative information sharing and problem solving between researchers, caregivers, and policy makers.” (As described on the Network’s website.)

     

  • JC’s Op Ed Article on talking with Children about Alzheimer’s disease

    Please go to this link at the Hamilton Spectator of January 17, 2011, to read JC’s article, which appeared in papers across Canada, from the Montreal Gazette to the Calgary Herald.